March is Lymphedema Awareness Month, during which the clinical, patient, and advocacy communities, as well as the private sector, join forces to increase awareness of this chronic condition. We are proud to be partnering with various organizations to do our part in spreading the word. Our team will be busy next month working with various entities to raise awareness about the symptoms, treatments, and support options related to lymphedema.
March 6 is World Lymphedema Day, celebrated every year to educate the public about this condition that affects somewhere between 150-250 million people worldwide. The number of Americans living with lymphedema is estimated at 5-10 million, though because the condition is many times undiagnosed or under-diagnosed this number could be higher.
This year, we will be working with the following organizations and foundations on multiple events throughout the month of March. Please contact us directly if you are interested in attending or learning more.
Susan G. Komen Foundation® Patient Education Series
Susan G. Komen® is the world’s leading nonprofit breast cancer organization, working to save lives and “end breast cancer forever.” The renowned foundation addresses breast cancer on multiple fronts such as research, community health, global outreach and public policy initiatives in order to make the biggest impact against this disease. They have raised hundreds of millions of dollars since their inception in 1982 to support cancer research, provide breast cancer screenings, and drive awareness worldwide.
On March 4, from 5:00-6:00 p.m. EST, a New Jersey-based branch of Susan G. Komen is hosting a virtual patient-focused educational event entitled, “Lymphedema: What You Need to Know.” Three clinicians (Gina M. Smith, JoAnna Hazard, and Dr. Imran Shariff) will present on various clinical topics.
Our team is sponsoring the event and will participate in a networking session where we will be able to inform patients about our product line that helps manage lymphedema, a common condition that surfaces in patients after breast cancer treatment.
If you are a patient interested in learning more about this event or attending, please visit the event registration page.
Lymphatic Education & Research (LE&RN) World Lymphedema Day®
The Lymphatic Education & Research Network (LE&RN) is an internationally recognized non-profit organization founded in 1998 to fight lymphatic diseases and lymphedema through education, research and advocacy. With chapters throughout the world, LE&RN seeks to accelerate the prevention, treatment and cure of these diseases while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic diseases, which include lymphedema and lipedema.
We have been working with the LE&RN group over the last few years, including participating in and sponsoring its walk series and political advocacy days. We have watched them continue to gain momentum and notoriety. Beloved actress Kathy Bates is the organization’s national spokesperson, and together with a fantastic executive director, board members, and volunteers the group continues to make strides towards their mission of realizing a world “with out lymphatic disease and lymphedema.”
On March 6, LE&RN will be presenting World Lymphedema Day, an online celebration of the work the organization has done and educational event about the conditions it is striving to eradicate. The virtual event will be hosted by Kathy Bates and will present a one-act play entitled Let’s Talk About Lymphedema. The celebration will presented at four times during the day to accommodate audiences nationwide.
AIROS is proud to be sponsoring event, and has the ability to donate tickets to interested patients, caregivers, educators, and loved ones. Please visit the registration page to learn more, and contact us immediately if you are interested in attending.
National Lymphedema Network (NLN) Lymphedema Awareness Campaign
The National Lymphedema Network (NLN) is another renowned organization dedicated to driving education and supporting lymphedema treatment. The NLN works to empower its community of lymphedema practitioners and patients by providing educational opportunities, networking opportunities, and interventional resources. Their relentless executive director and team also works with clinicians to provide world-class care for people with lymphedema by promoting best practice guidelines and standards of care.
Every afternoon in March, from 5:00-6:00 p.m. EST, the NLN will be providing virtual educational awareness events tailored for the patient community. Physicians, lymphedema therapists, and other medical professionals will present on various clinical topics. Here are some listed below.
- Demonstration of (Self) Manual Lymphatic Drainage, including for the hand, arm, leg, head and neck
- Insurance Coverage & Options
- Compression Garments, including measurements, selection, pressures, and more
- Compression Therapy Devices
- Exercise & Health Habits
On March 14, our team will deliver a presentation related to compression therapy devices and how patients can acquire our types of products after being provided a script from their physicians. More details on the specifics of the presentation will follow. Please contact us immediately if you are interested in registering for any of the NLN’s events in March.